فهرست:
1 مقدمه(زمینه پژوهش) …………………….....………………………………. 10
2-1 اهداف پژوهش ………………………………….…….…………….…….. 13
3-1 سوالات پژوهش …………………………….……………..……………… 15
4-1 تعاریف واژه ها ………………………………..………..………………… 17
5-1 محدودیت های پژوهش …………………………..………..……………….. 19
فصل دوم : زمینه و پیشینه پژوهش
1-2 چهارچوب پژوهش …………………………….….…....………………… 21
2-2 مروری بر مطالعات انجام شده …………………….………..……………….. 42
فصل سوم : روش اجرا
1-3 نوع پژوهش …………………………….……...………………………… 57
2-3 جامعه پژوهش ………………………….……...………………………… 57
3-3 نمونه پژوهش ……………………….....……...…………………………. 57
4-3 روش نمونه گیری …………………………….…......….………………… 57
5-3 محیط پژوهش …………………………………..……………………….. 57
6-3 معیارهای ورود …………………………………..……………………… 58
7-3 معیارهای خروج …………………………………..…..………………… 58
8-3 ابزارگردآوری اطلاعات …………………….….……….…….…………… 58
9-3 تعیین اعتبار و اعتماد علمی ابزار …………………………...........….……… 59
10-3 روش گردآوری دادهها …………………………….……..……………… 59
10-3 روش تجزیه وتحلیل ………………………………....….…....………… 60
11-3 ملاحظات اخلاقی …………….......…………..……....….…..………… 61
فصل چهارم : نتایج تحقیق
1-4 یافته های پژوهش …………………....………….………….…………… 63
2-4 جداول و نمودارها …………………….....…………...…………………. 64
فصل پنجم : بحث و بررسی یافته ها
1-5 بحث وتفسیر نتایج پژوهش ………………….………....….………………. 108
2-5 نتیجه گیری نهایی ………………………………….……….…………… 112
3-5 کاربرد یافته ها …………………………………….……….……………. 113
4-5 پیشنهادات برای پژوهش های بعدی ……………………..…..…….………… 114
منابع و ماخذ
فهرست منابع …………………………………….………….…….…………. 116
پیوست ها ………………………………………………....…….………… 125
چکیده انگلیسی
منبع:
1.Hampton, T. Traumatic Brain Injury a Growing Problem Among Serving in Today’s Wars. JAMA. 2011;306(5): 477-479
2.Silva, M.J; Roberts, I; Perel, P.; Edwards, P; Kenward, M.G; Fernandes,J.; Shakur, H.& Patel,V. Patient Outcome After Traumatic Brain Injury in High, Middle and Low income countries: Analysis of Data on 8927 Patients in 46 Countries. International Journal of Epidemiology, 2009; 38: 452-458.
3.Torpy, J.M. Traumatic Brain Injury. JAMA. 2003; 289(22): 30-38.
4.Barker E. Neuroscience nursing a spectrum of care. 3rd ed. St. Louise, Mosby 2008; p:337.
Ebrahimi Fakhar HR, Moshiri E, Zand S. An investigation on quality of emergency care of head injury patients in emergency ward, Vali-e-Asr hospital, Arak 2005. Journal of Arak University of medical sciensec. 2007; 10(4):1-11.
6.Yousef zade Chabok sh et al, Epidemiology of head injury in patients who were reffered to poorsina hospital, Journal of medical science university of Gilan, 2007; 16(64): 112-119. [Text in Persian]
7.Nieto, J.C.R; Campos, F.I.; Ospino, S.M. Neuropsychiatric sequelae of TBI. In: Neuropsquiatria of head trauma, Souza, C.A.C.Revinter, 2003; 89-97,Rio de Janeiro
8.Masel, B. & DeWitt, D.S. Traumatic Brain Injury: A Disease Process, Not an Event. Journal of Neurotrauma. 2010; 27:1529-1540.
9.Syed hasaan ST,khawWF, rosna Ar, husna J, Traumatic brain injury: Caregivers problems and needs, J Nepal Med Assoc, 2011; 51(181): 53-5.
10.Gaboda D, Lewis D, Nova J, Brownlee S, Fisher Thiel M. Traumatic brain injury needs and resourses assessment for new jersey, Rutgers center for state health policy, june 2009,p 1.
11.Cole, W.R, Paulos S.K, Cole C.A.S. & Tankard C. A. Review of Family Intervention Guidelines for Pediatric Acquired Brain Injuries. Dev Disabil Res Rev. 2009; 15:159-166.
12.Hora, E.C, Sousa RMC. The effects of behavioral changes for victims of traumatic brain injury for the family caregiver. Rev Lat Americana Enf, 2005;13(1):93-98.
13.Watanabe, Y; Shiel, A; Asami, T; Taki, K; Tabuchi, K. An evaluation of neurobehavioural problems as perceived by family members and levels of family stress 1-3 years following brain injury in Japan. Clin Rehabil. 2000;14(2):172-7.
Hassan STS, Khaw WF, Rosna AR, Husna J. Traumatic Brain Injury: Caregivers’ Problems and Needs. J Nepal Med Assoc 2011;51(181):53-5.
15.Kaplan H, saduc B, summary of psychology. Translate by rafie H, sajaeian KH, 2th, 9ed, publication for tomorrow, 2003. [Text in Persian]
16.Golder M, Mayo R, Goldes J, Oxford psychology, translate by arjmand M, Sadeghi M, First publication ; Tehran, Arjmand,2005. [Text in Persian]
17.Freeman, E.A. Community-based rehabilitation of the person with a severe brain injury. Brain Inj.1997;11(2):143-153.
18.Sander AM, Kreutzer JS. A holistic aprroach to family assessment after brain injury. In: Rosenthal M, Griffith ER, Kreutzer JS, Pentland B, editors. Rehabilitation of the adult and child with traumatic brain injury. 3. ed. Philadelfia: FA Davis; 1999;1999-2015.
19.Tyerman A, Booth J. Family interventions after traumatic brain injury: a service example. Neurorehabilitation 2001; 16(1):59-66.
Blake H. Caregiver stress in traumatic brain injury. Int J Ther Rehabil. 2008 Jun;15(6):263-71.
Hawley CA, Ward AB, Magnay AR, Long J. Parental stress and burden following traumatic brain injury amongst children and adolescents. Brain Inj. 2003 Jan;17(1):1-23.
Kolakowsky-Hayner SA, Miner KD, Kreutzer JS. Long–term life quality and family needs after traumatic brain injury. J Head Trauma Rehabil 2001; 16(4):374-85.
23.Sole M L. klein D G. Moseley J M. introduction to critical care nursing. 4th ed. Elsevier: saunders, 2005.
24.Yin king lee L A. lau YL. Immediate needs of adults family member of adult intensive care patient in hong cong. Journal of clinical nursing. 2003; (12): 490-500.
25.Arango-Lasprilla JC, Quijano MC, Aponte M, Cuervo MT, Nicholls E, Rogers HL et al. Family needs in caregivers of individuals with traumatic brain injury from Colombia,South America. Brain Inj. 2010; 24(7-8):1017-26.
26.Hora E.C, De souse R.M.C, Cross-cultural adaptation of the instrument `FAMILY NEED QUESTIONNAIRE`,rev latino-am enfermagen, 2009, Julho-agosto; 17(4): 541-7.
Mariani , P. P; Paranhos, W. I. Traumatic brain injury, In: Expertise in trauma: an approach to nursing, Sousa, RMC; Calil, AM; Paranhos, WI; Malvestio MA, (Ed), 2009; pp. 263-88, Atheneu, ISBN 978-85-7379-309-3, Sao Paulo.
28.Stroud L, Foxcroft C.D, van der Merwe J. Family Needs Following Adult Traumatic Brain Injury. Submitted in partial fulfilment of the requirements for the degree of Magister Artium In Clinical Psychology In the Faculty of Health Sciences at the UNIVERSITY OF PORT ELIZABETH; January 2004.
29.Langlois, J. A., Rutland.Brown, W. & Thomas, K. E. Traumatic Brain Injury in The united states: Emergency Department Visits, Hospitalizations and Deths. Atlanta, GA: Centers For Disease Central and Prevention, National center For injury Prevention and Control. (2006).
30.Flanagan, S. R., Hibbard, M. R. & Gordon, W. A. The Impact of age on Traumatic brain injury. Physical Medicine and Rehabilitation Clinics of north America,2005;16(1):163-178.
31.Thompson, H. J. & Bourbonniere, M. Traumatic in the older adult frome head to toe. Critical Care nursing Clinics OF North America, 2006; 18(3):419-431.
32.Sousa, RMC. Traumatic brain injury-Theoretical Foundations of Nursing Interventions, In: Neuroscience Nursing: Essentials for clinical practice, Koizumi, MS; Diccini MS, (Ed),2006; pp.209-231, ISBN 85-7379-840-8, Sao Paulo
33.Smeltzer S, Bare B, Hinkle J, Cheever K. Text book of medical surgical nursing. 12th Ed, Philadelphia: W. B. sunders, Translate by moshtagh Z, salami S, Tehran,jamenegar.2010.[ Text in Persian]
34.Porth, C. M. & Matfin, G. Pathophysiology: Concepts of altered health status (8th ed).2009, Philadelphia: Lippincott Williams & Wilkins.
35.Souza, C.A.C. Neuropsychiatry of traumatic brain injury. Revinter, Rio de Janeiro,2003.
36.Hoge, C. W., McGurk, D., Thomas, J. L., Cox, A. L., Engel, C. C., & Castro, C. A. Mild traumatic brain injury in US soldiers returning from Iraq. New England Journal of Medicine, 2008; 358(5); 453-463.
37.Martin, E. M., Lu, W. C., Helmick, K., French, L., & Warden, D. L. Traumatic brain injuries sustained in the Afghanistan and Iraq wars. AJN The American Journal of Nursing, 2008; 108(4):40-47.
38.Hickey, J. V. The clinical practice of neurogical & neurosurgical nursing (6th ed.). Philadelphia: Lippincott Williams & Wilkins.2009.
39.Bay, E. & Mclean, S. Mild traumatic brain injury: an update for advanced practice nurse. Journal of Neuroscience Nursing, 2007;39(1): 43-51.
40.Sousa, RMC. Standardized measurement tools for diagnosing the severity of the trauma and in pre-hospital, In: Expertise in trauma: an approach to nursing, Sousa, RMC; Calil, AM; Paranhos, WI; Malvestio MA, (Ed.),2009;pp. 95-111, Atheneu, ISBN 978-85-7379-309-3, Sao Paulo.
41.Grote, S.; Bocker, W.; Mutschler, W.; Bouillon, B. & Lefering, R. Diagnostic Value ofthe Glasgow Coma Scale for Traumatic Brain Injury in 18,002 Patients With SevereMultiple Injuries. Journal of Neurotrauma.2011; 28: 527-534.
42.Nichols M, et al. The Missouri Green book. Living with brain injury: A guide for survivor, Families and caregivers. The Missouri Department of Health and Senior Services, and the Brain Injury Association of Missouri.1-600-451-0669. 2012.
43.Emam Hadi M. Head Trauma: Medicine and nursing care. Rasht, Publications of Guilan University of Medical Sciences, 2004.[text in Persian]
44.Hora E.C.H, Aguiar A.F.M. The patient with intracranial hypertension in the ICU In: ICU Nursing: caring for the critically ill patient, Padilha, KG; Vattimo, MFF; Silva,SC; Kimura, M, (Ed), 2010; 467-493, Manole, ISBN 978-85-204-2929-7, Sao Paulo ISBN 85-334-0446-8, Brasilia
45.Arbour R. Intracranial Hypertension: monitoring and nursing assessment. Crit Care Nurse. 2004;24(5):19-32.
46.Bader, M. K., Arbour, R., & Palmer, S. Refractory increased intracranial pressure in severe traumatic brain injury: barbiturate coma and bispectral index monitoring. AACN Advanced Critical Care, 2005; 16(4);526-541.
47.Jantzen, J.P.A.H. Prevention and treatment of intracranial hypertension. Brest Pract Res Clin Anaesthesiol. 2007; 21 (4):517-38
48.Josephson, L .Manegement of increased intracranial pressure. Dimens crit care nurs. 2004;23 (5):194-207.
49.Bjork, J.M. & Grant, S. Does Traumatic Brain Injury Increase Risk for Substance Abuse? Journal of Neurotrauma. 2009;26:1077-1082
50.Nieto, J.C.R; Campos, F.I; Ospino, S.M. Neuropsychiatric sequelae of TBI. in: Neuropsquiatria of head trauma, Souza, C.A.C.Revinter, 2003, pp.89-97 Rio de Janeiro,
51.Masel, B. & DeWitt, D.S. Traumatic Brain Injury: A Disease Process, Not an Event. Journal of Neurotrauma. 2010;27;1529-1540.
52.Láinez, M.J.; Pesquera, B.L. Headache After Trauma: Physiological Considerations. Curr Pain Headache Rep. 2011.
53.Nampiaparampil, D. E. Prevalence of Chronic Pain After Traumatic Brain Injury: A Systematic Brain Injury. JAMA. 2008;300(6): 711-719.
54.National Institutes Health [NIH]. Rehabilitation of Persons With Traumatic Brain Injury. JAMA. 1999;282(10): 974-983.
55.Gould K.R, Ponsford J.L, Johnston L & Schonberger. Predictive and Associated Factors of Psychiatric Disorders After Traumatic Brain Injury: A prospective Study. Journal of Neurotrauma. 2011;28, 1155-1163
56.Molloy, C.; Conroy, R.M.; Cotter, D. R. & Cannon, M. Is Traumatic Brain Injury a Risk Factor for Schizophrenia? A Meta-Analysis of Case-Controlled Population-Based Studies. Schizophrenia Bulletin, 2011; 28 1-7.
57.Cameron CM, Purdie DM, Kliewer EV, McClure RJ. Ten-year outcomes following traumatic brain injury: a population-based cohort. Brain Inj 2008; 22: 437-49.
58.Maia, C.R; Terra, M.B; Coimbra, M. Programs to help the patients of TBI and their families. In: Neuropsquiatria of head trauma, Souza C.A.C.Revinter, 2003;245-262, Rio de Janeiro.
59.Ponsford, J., Cameron, P., Fitzgerald, M., Grant, M., & Mikocka-Walus, A. Long-term outcomes after uncomplicated mild traumatic brain injury: a comparison with trauma controls. Journal of neurotrauma, 2011;28(6): 937-946.
60.Bigler, E.D. The Lesion(s) in Traumatic Brain Injury: Implications for Clinical Neuropsychology. Archives of Clinical Neuropsychology, 2001;16: 95-131.
61.Schreiber, S.; Barkai, G.; Gur- Hartman, T.; Peles, E. Tov, N.; Dolberg & O.T.; Pick, C.G. Long-Lasting Sleep Patterns Of Adult Patients With Minor Traumatic Brain Injury (MTBI) and non-m TBI subjects. Sleep Medicine. 2008; 9: 481-487.
62.Hartlage, L.C; Durant-Wilson, D. & Patch, P.C. Persistent Neurobehavioral Problems Following Mild Traumatic Brain Injury. Archives of Clinical Neuropsychology, 2001;16; 561-570.
63.Hartholt, K.A.; Van Lieshout, E.M.M.; Polinder, S.; Panneman, J.M.; Van der Carmmen, T.J.M.& Patka, P. Traumatic Brain injury: Consequences and family needs. Journal of Neurotrauma. 2011;28, 739-744.
64.Sluzki, C.E. The social network in systemic practice: therapeutic alternatives. ISBN 85-85141-77-8 .1997.Sao Paulo.
65.Zasler ND, Kreutzer JS. Family and sexuality after traumatic brain injury. In: Head Injury a family matter, Williams, J, 1990;253-270.
66.Colantonio, A.; Mar, W.; Escobar, M.; Yoshida, K.; Velikonja, D.; Rizoli, S.; Cusimano, M. & Cullen, N. Women’s Health Outcomes After Traumatic Brain Injury. Journal of Women’s Health. 2010; 19(6):1109-1116.
67.Hawthorne, G.; Gruen, R. & Kaye, A.H. Traumatic Brain Injury and Long-Term Quality of Life: Findings from an Australian Study. Journal of Neurotrauma. 2008;26, 1623-1633.
68.Dugas B, et al. Principles ofPatient Care: Comprehensive Review of Nursing. Translate by Atashzade f, et al. First edition, Tehran, Publication of Arian teb; 2003. [Text in Persian]
69.Tylor C. Lilis C. Fundamentals Of nursing. 4TH Ed. Philadelphia Lippincott: Williams & wilking, 2005.
70.Bephage C. social and behavior sciences for nurses. 1st ed London: Philadelphia Churchill Livingstone, 2002.
71.Smeltzer S, Bar B. Text book medical surgical nursing. 10th Ed, Philadelphia: W. B. sunders, 2004.
72.Beverly w. Dugas nursing foundation .Tehran: Golban publication; 2003. [Text in Persian]
73.Sole m, klein dg, moseley mj. Critical care nursing. California: elsevier saunders; 2005.
74.Urden LD, K.M. S, laugh ME. Thelans critical care nursing. Ed t, editor. California: mosby elsevier, 2006.
75.Duarte YAO. Family: Network support or stressor, the perspective of seniors and caregivers Family. School of Nursing, 2001, Sao Paulo.
76.Mioto, R.C.T. The knowledge that we do have the intervention: a reflectionattention on families in the social policy field. In: Researching the family: contemporary looks. Althof, C.R; Elsen, I; : Papa-Livro , Nitschke, R.G. Florianopolis,pp.107-114, ISBN 85-7291-126-X
77.Walsh, F. Strengthening family resilience. Editora Roca, 2005, Sao Paulo.
78.Kreutzer, J. S; Rapport, L. J. ; Marwitz, J.H.; Harrison-Felix, C.; Hart, T.; Glenn, M.& Hammond, F. Caregivers’ Well-Being After Traumatic Brain Injury: A Multicenter Prospective Investigation. Arch Phys Med Rehabil. 2009; 90;938-946.
79.Hora, E.C; Sousa, RMC. The effects of behavioral changes of victims of traumatic brain injury for the family caregiver. Rev Lat American Nurse.2005;13(1):93-98.
80.Kreutzer, JS; Marwitz, J.H; Kepler K. Traumatic brain injury: family response and outcome. Arch Phys Med Rehabil. 1992; 73;771-777.
81.Sander, A.M; Kreutzer, J.S. A holistic aprroach to family assessment after brain injury. In: Rehabilitation of the adult and child with traumatic brain Injury, Rosenthal, M;Griffith, E.R; Kreutzer, J.S; Pentland, B. Philadelfia: F A Davis, 1999:199-215
82.Taylor c, lillis C, Lemone P. Fundamentals of nursing. The Art and sciens of nursing care. 4 ed. Tehran: boshra publication; 2003. [Text in Persian]
83.Leon AM, Knapp S. involving family system in critical care nursing: challenges and oppurtunities. Dimens crit care nurs. 2008; nov-des; 27(6): 255-62.
84.M.Black J. Hawks J. Medical Surgical Nursing. Clinical Management For Positive Outcomes 8 ed. Translate By moshtagh Z, Tehran: jamenegar : Salemi,2010.[ Text in Persian]
85.MurrayH, W.Maslany G & Bonnie Jeffery. Assessment of family needs following acquired brain injury in Saskatchewan. Brain Injury, June 2006;20(6): 575–585.
86.Kreutzer J, Stejskal T, Ketchum J, Marwitz J, Taylor L & Menzel J. A preliminary investigation of the brain injury family intervention: Impact on family members. Brain Injury, June 2009; 23(6): 535–547.
87.Gan C, Gargaro J, Kreutzer J, Boschen K & Wright V. Development and preliminary evaluation of a structured family system intervention for adolescents with brain injury and their families. Brain Injury, April 2010; 24(4): 651–663.
88.Rotondi AJ, Sinkule J, Balzer K, Harris J, Moldovan R. A qualitative needs assessment of persons who have experienced traumatic brain injury and their primary family caregivers. J Head Trauma Rehabil. 2007 Jan-Feb; 22(1):14-25.
89.Krutzer J, Miner K, Kolaowsky-Hayner S. Long-Term life quality and family needs after traumatic brain injury; J head trauma rehabilitation 2001;16(4):374-385.
90. BondA, Rae Lee Draeger C, Mandleco B, Donnelly M. Needs of Family Members of Patients With Severe Traumatic Brain Injury Implications for Evidence-Based Practice.Critical Care Nurse, August 2003; 234:63-72.
91.Nampiaparampil DE. Prevalence of chronic pain aftertraumatic brain injury. Journal of the American MedicalAssociation 2008; 300:711–719.
92.Falk A, Wendt L, Klang B.Informational needs in families after their child’s mild head injury,Patient Education and Counseling 70 (2008); 251–255.
93.Pamela wilder Schaaf K,J. Danish S. Polytrauma family needs assessment, Virginia Commonwealth University Richmond, Virginia May 2010.
94.Jafari M, Makarem A, Dalvandi A, Azimian M, Hosseini M.A. Determination of facilitators and barriers in post stroke life, in Kerman city, Journal of new rehabilitation, Faculty of rehabilitation, Tehran university of medical Science 2011;5(2): 54-61. [Text in Persian]
95.Rambod M, Rafie F,Perceived social support in hemodialysis patients.Iran Journal of Nursing (IJN) 2009; 22(58):99-110. [Text in Persian]
96.Zamanzadeh V, Heidarzadeh M, Oshvandi Kh andLakdizaji S. Relationship between quality of life andsocial support in hemodialysis patients in ImamKhomeini and Sina educational hospitals of TabrizUniversity of Medical Sciences Persian. Med J Tabriz Univ Med Sci 2007; 29(1): 49-54. [Text in Persian]
97.Heidarzadeh M, Ghahremanian A, Hagigat A, Yoosefi E. Relationship between Quality of Life and Social Support in Stroke Patients, Iran J NursRes 2009; 22(59): 23-32. [Text in Persian]
98.Ghodusi Burojeni M, Heidari M, Sharifi Neyestanak N, Shahbazi S. Correlation of perceived social support and some of the demographic factors in patients with Multiple Sclerosis, Journal of health promotion management, 2012; 2(1): 31-24. [Text in Persian]
99.Haririan H, Aghaganlu A, Ghafuryfard M, The status of social support in hemodialysis patients of Zanjan city. Journal of Islamic Azad University of Medical Science. 2013;23(1):74-80. [Text in Persian]
100.Abbasi A, Asayesh H, Rahmani H, Shariati A, Hosseini S, Rouhi Gh, et al. The Burden on Cargivers from Hemodialysis Patients and Related Factors. Journal of Nursing and Midwifery, Gorgan university, 2011; 8(1):26-33.[Text in Persian]
101.Rabie siahkali S, khaleghdoost mohamadi T, paryad E. Survey of effective factors on patient family members anxiety in intensive care unit at education-therapeutic centrals in Rasht in 2006-2007, Guilan university of medical Science, shahid Beheshti College of Nursing and Midwifery. [Text in Persian]
Davari M. Economic challenges facing The health system in iran.